|Posted by catherine on October 31, 2008 at 9:05 AM|
I feel I have to apologise for my lack of interaction on the website lately. I am checking the guestbook, forum and new members each day but don't have much time to get back to everyone personally at the minute as my 97 year old mother had a stroke and most of my time is being taken up with sitting with her and running errands etc.
I am extremely pleased with the direction the website is taking and get many lovely (and sad ) emails from folk who have found the site (I can be contacted at [email protected] if anyone wants to chat or generally let off steam about this horrible condition. I am hoping, at some point, to get a survey up and running but it looks like it is going to be a huge task as it will have to dig deep to give a detailed picture of the folk who end up with E.T. I am pretty sure that there has never been a detailed survey carried out before of Essential Tremor but feel free to correct me if I am wrong. Once I have all the questions in place (there will be a lot of them!!!) I intend to run the survey for 1 year to see if I can come up with any similarities between us, apart from it being genetic.
Anyway folk, I am having a very bad day with my tremor. I wakened during the night to go to the bathroom and was so shaky from head to foot that I was banging into the walls. I went back to bed and got up this morning to the same. I have had a lot of trouble navigating the stairs in my home, difficulty with the computer, Hell, even the skin on my face is trembling which is pretty difficult for a gal who puts on make up every day in life. Oh well, it's Halloween - maybe I'll get away with the smudged make up today!!!