Benign Essential Tremor Info

Benign Essential Tremor - The Essential Facts

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Apologies To Everyone

Posted by catherine on October 31, 2008 at 9:05 AM

I feel I have to apologise for my lack of interaction on the website lately. I am checking the guestbook, forum and new members each day but don't have much time to get back to everyone personally at the minute as my 97 year old mother had a stroke and most of my time is being taken up with sitting with her and running errands etc.

I am extremely pleased with the direction the website is taking and get many lovely (and sad ) emails from folk who have found the site (I can be contacted at [email protected] if anyone wants to chat or generally let off steam about this horrible condition. I am hoping, at some point, to get a survey up and running but it looks like it is going to be a huge task as it will have to dig deep to give a detailed picture of the folk who end up with E.T. I am pretty sure that there has never been a detailed survey carried out before of Essential Tremor but feel free to correct me if I am wrong. Once I have all the questions in place (there will be a lot of them!!!) I intend to run the survey for 1 year to see if I can come up with any similarities between us, apart from it being genetic.

Anyway folk, I am having a very bad day with my tremor. I wakened during the night to go to the bathroom and was so shaky from head to foot that I was banging into the walls. I went back to bed and got up this morning to the same. I have had a lot of trouble navigating the stairs in my home, difficulty with the computer, Hell, even the skin on my face is trembling which is pretty difficult for a gal who puts on make up every day in life. Oh well, it's Halloween - maybe I'll get away with the smudged make up today!!!

Catherine

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4 Comments

Reply catherine
1:36 PM on September 22, 2010 
sandy Tancred says...
I can sympathize with you my husband has essential tremor, he started to show signs about 10 years ago, it was just a small uncontrollable hand shake, he is now 50 and the shaking of his hands is very obvious, he finds it very hard to write, it is almost elligable, he also suffers with Bi-polar disorder, that is how the tremor started he was subscribed, a medication called serenace, about 20 years ago, since then this particular medication is not so freely given out, as its side effects are devastating, we hope one day my husband Jamie will be free of this tremor ,that makes life very hard for him, people look at him like is a nervous wreck or a heavy drinker which he is neither. I sometimes think its starting to effect his breathing, especially at night when he is in bed.

Hoping what I have told you helps.

Sandy Tancred.

I am trying to find info someone sent to me on Facebook but it isn't working properly for me at the min. Basically, it was a newspaper article about Bi - polar . It mentioned 2 chemicals that were lacking in Bi-Polar but I know this woman has E.T. + Bi-Polar so I checked out the chemicals and they were both linked, i.e. someone with bi polar has that deficiency but someone with E.T. also has it. As soon as I find it I will get back to you
Reply sandy Tancred
7:41 AM on September 22, 2010 
I can sympathize with you my husband has essential tremor, he started to show signs about 10 years ago, it was just a small uncontrollable hand shake, he is now 50 and the shaking of his hands is very obvious, he finds it very hard to write, it is almost elligable, he also suffers with Bi-polar disorder, that is how the tremor started he was subscribed, a medication called serenace, about 20 years ago, since then this particular medication is not so freely given out, as its side effects are devastating, we hope one day my husband Jamie will be free of this tremor ,that makes life very hard for him, people look at him like is a nervous wreck or a heavy drinker which he is neither. I sometimes think its starting to effect his breathing, especially at night when he is in bed.

Hoping what I have told you helps.

Sandy Tancred.
Reply Carol smith
11:50 AM on June 19, 2009 
Is any1 having problems with these lower back and walking
Reply Susan
10:40 AM on November 10, 2008 
I under went bi-lateral DBS (deep brain stimulation) in June of this yr. The surgery did not accomplish what I hoped for, in fact it introduced another problem, dysarthria( slurred speech). When the electrical device is off my tremors are in full for force as usual. When it is on the tremors are better but my speech is affected. <br>Anyone out there having these problems?