Benign Essential Tremor Info

Benign Essential Tremor - The Essential Facts

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284 Comments

Reply Bill
6:51 AM on August 21, 2012 
Catherine - you're a star! Thanks for establishing this very informative and very helpful website. After 50 years of shaking and wobbling I have finally taken my first ever Beta Blockers about an hour ago....
Let's see how it all goes - I'm hoping for the best and feeling very liberated, thanks to you and the feedback from the other members of your site! I'll keep you posted and I look forward to hearing from you or any other members if you feel like sharing stories or want some support....
Thanks again mate.... : -)
Reply Nate Healy
5:14 PM on July 27, 2012 
do not worry about the embarrassment. When people notice it , tell them. You will be amazed at the response you receive. It is a condition, but it will not take over your life.
Reply Nate Healy
12:53 PM on May 31, 2012 
I have recently started taking propranlol fo rmy ET and it workes very well. It can be emarrassing in front of people when they notice that your hands shake and ask you if you are suffering from DT'S. More people should be educated on this subject.
Reply Nikki
6:54 PM on March 27, 2012 
Hello I have had the hand tremor for 8 yrs and went we noticed it we went to a neuralugist and went for a MRI they found nothing. Then after i had my daughter 3 yrs ago it got much worse and not only in my hands now my arms, legs and head also. Last year I went back to the same neuralugist and they told me i have E.T., and I am waiting for another MRI to compare to my first one 8 years ago. It is very frustrating and embarrassing as everyone asks me why im shaking or why am i nervous!! It makes me feel like I am constently scetched out and a nervous wreck do anyone else feel like this? will drugs actually help?
thx N
Reply michala
2:07 PM on February 1, 2012 
My Mom and Dad noticed my tremors as a child. Obviously i didn't notice them myself. Now im 16 turning 17 my tremors stand out more than me. They affect me in many ways. I've never known anyone else have them i always thought i was the odd one out but reading about how all you others suffer the same as me is great in a odd way. at the age of 9 i went threw so much, was on upto 12 tablets a day and at the age of 11 i gave up. I find it an embarrasment and i cant see a future ahead of me whilst i have this. I get upset quite frequently about them. Now i have decided to go back to the doctors and see weather there is anything more stronger now i am older. I've had thoughts about the surgery option, if only there was a cure! if anyone has had any medication that they have found really helpful please please PLEASE, give me a email- [email protected] Thanks so much!xxx
Reply Nicky
2:51 PM on January 8, 2012 
I've had my tremor for 10 years I'm 39 now, it's progressively got worse. It affects my whole body but not my head... I've tried all medication none has worked!!! I have also been offered DBS (I'm too scared to have this done) can anyone advise what I can do to help?? I excercise weight train eat healthy
Reply Grumpygirlz
2:23 PM on September 12, 2011 
My sister works in a lab and she said that it can be misdiagnosed simply because some patients, like yourself, is Vit. B deficient. I know my neurologist is checking my vit b level. I have a mri on Thurs.
Reply mbowen
11:29 PM on August 24, 2011 
My hands started shaking when I was 12 years old, I turned 21 in July. At first it was just in my hands. When I was 14 my doctor did blood work, nothing came back so he decided I was having to much caffeine...I hardly ever had it. Then when I was 18, I saw my first neurologist, another round of blood work and a MRI but nothing showed up, he basically told me the shaking was all in my head and I was causing it to happen. I stopped going to him after that and stopped trying to figure out what was causing this. It seemed like no doctor wanted to help. However, back in February my shaking reached a new level. It was becoming difficult for me to perform simple tasks at my job and then in June my mouth started chattering. I couldn't open my mouth without it shaking and it was difficult to talk. My mom rushed me to the ER and had to sign my name for me because I was unable to do so. Once again, blood work, CT scan, urine tests...all fine. Then I heard the doctor say "Essential Tremor" he said his brother had it and mine looked very similar to his. For the first time someone was helping me. I started going to a new neurologist, she started me on bp meds. They worked but the side effects were too much. I'm currently on primidone now. I just got a phone call from her this evening though and my blood work came back with vitamin B deficiency. She said that's why it's probably gotten worse. All these years though and no one had bothered to check my vitamin levels. I was so excited to come across this site though, it has so much information to offer. Thanks for that.
Reply Brian
8:31 PM on August 4, 2011 
Thank you for the info. I was diagnosed with BET about 10 years ago. The neurologist said you have BET. You were probably born with it and you are going to die with it. That was it. I never knew there was medication available for it. I wouldn't have even gone looking for more informations had it not been for the extreme shaking this summer. I have found any kind of resistance to my hands and fingers and I shake. Even trying to smile, I can't hold it for very long without tremors. This has been very informative. Thank you Catherine!
Reply catherine
2:05 AM on July 14, 2011 
Excellent post, Nate - short and to the point. It is very easy for folk with B.E.T to fall into the trap of relying on alcohol to still the tremor

Nate Healy says...
I am 40 Yrs of age and have suffered From B.E.T. since childhood. Have abused alcohol before as thought it would help, but this makes it ten times worse. Better to be properly diagnosed and getting medical help than driving yourself to an early
Grave.