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Richard W. Rogers
After living with BET or ET for 20 years, now at the age of 65, I have finally discovered and been diagnosed with BET. I have just started Primidone therapy along with my other beta blocker for high blood pressure.
At the onset of ET I thought it must be a sugar related cause, and greatly reduced my sugar intake, to no avail. Then switched my thinking to alcohol use, being a daily indulger since my early 20's, so last Lent I gave up the use of alcohol, and the tremors did not stop. After Lent, at my last annual physical, I related the story to my GP and also told him, that when I resumed my normal 2 to 4 drinks in the cocktail hour and early evening, the tremors completely subsided. He immeadiately said, "You have BET", and referred me to a Neurologist who has confirmed the diagnosis.
The tremors only affect my right arm and hand, and only happens when I try to write or use other motor skills ie: using a computer mouse. It is absent when my arm is at rest. The tremors become more acute when the task I am trying to perform is smaller. For example trying to replace the small screw in a pair or eyeglass frames.
It has only been 3 weeks since this occured, and so far the Primidone has not achieved my hoped for result. Next week I start 2 a day instead of the 1 a day I am taking now. Hopefully that will accomplish the desired result.
Thank you very much for a very informative website, it is so nice to see that other people are affected by this condition and what they have done to combat their condition.
Hi there, just stumbled across this site. im now 30yrs and have had BET since I was around 15. It all started with me trying to pour sugar into a smaller container, and it went everywhere!! haha :) For a long period of time i didnt know about beta blockers. But have now been on them for around 10 years.
On a side note, ive noticed when i go off the meds (ie i travel somewhere and forget to bring them with me, yep its happened!) not only do the shakes increase, but i also feel like everything visually is fairly surreal... dont know if other people have experienced this or not.
I've got the issue with my hands alone and didnt realise this was a problem with the neck/head and other areas of the body well.
I didnt know about Primidone until now, and may check this out as an alternitive. But for me, the beta blockers lower the amplitude of tremors by about half. Its only when i do excessive exercise like wieghtlifting my whole arms shake. And yeah its amazing what alcohol can do... however yes side effects can be worse than the relief.
My father had the same condition, so this was passed down the gene's in my case i guess.
I empathise with many of you who have written here, I've faced the same social hurdles...however I feel there is a certain amount of relief from this condition that can be achieved by taking it in good humor. People dont understand, so yes they will make a crack about you being "nervous" or think your an alcoholic from way back!! But therein is the issue, [u]they dont understand it[/u]. So (obviously) dont ever put yourself down, but when faced with the minor embarrassment of someone seeing my shakes for the first time i'll make light of the situation by first saying what the condition is called and make a joke about it. Maybe something like "...yeah they dont let me drink alcohol at work" with a cheeky grin of course! Most of the time from that point it'll become a non-issue. And those that persist mainly want to learn more about it.
Some of the stuff i read here sounds like me some 5 years ago...Ive also gone through phases in my life where ive felt very alone and felt like some sort of social outcast... I would ask you all not to allow the condition to control your life in that way. It'll only be detremental to the personality you already have.
Best wishes to you all, feel free to email me if you want. And BTW great site